Myasthenia Gravis Swallowing Problems: How to Eat Safely With MG

Myasthenia gravis swallowing problems happen when MG weakens the muscles you use to chew and swallow. Food may feel stuck, liquids may make you cough, and your jaw or throat may tire before the meal is done. Eating when your muscles are strongest, choosing softer, moist foods and working with a speech-language pathologist can help you eat more safely.

Trouble swallowing is called dysphagia. It is common in MG, and it is worth taking seriously. Food or drink that goes down the wrong way can reach your lungs. Here is what to watch for and how to make mealtimes safer.

Why MG Affects Chewing and Swallowing

Swallowing looks simple, but it is a lot of work. The Myasthenia Gravis Foundation of America (MGFA) notes that swallowing uses about 50 pairs of muscles. MG can weaken any of them.

Like other MG weakness, swallowing muscles get tired with use. According to the MGFA, they may tire near the end of a meal or when a food needs a lot of chewing. That is why the first few bites can feel fine and the last few can feel hard.

The MGFA also notes that swallowing problems can come on slowly or suddenly. Sometimes they last even after other MG symptoms get better.

Signs of a Swallowing Problem

Pay attention to what happens during and after meals. Based on the MGFA and the Walton Centre, a UK neurology hospital, common signs include:

  • Coughing, choking or clearing your throat while eating or drinking
  • A wet, gurgling voice after you eat or drink
  • Feeling like food is stuck in your throat
  • Needing several swallows for one bite
  • Food or liquid coming out of your nose
  • A jaw that tires out partway through chewing
  • Drooling, or trouble managing saliva
  • Getting short of breath or having watery eyes during meals
  • Meals that take much longer than they used to
  • Repeated chest infections

Tell your neurologist about any of these. Do not wait for your next routine visit if they are new or getting worse. You can also read more about myasthenia gravis symptoms.

Myasthenia Gravis Swallowing Tips: Time Your Meals

Since MG weakness changes through the day, when you eat matters as much as what you eat.

Eat when you are strongest

Mayo Clinic suggests timing meals for when your muscle strength is good. For many people, that is earlier in the day. Conquer Myasthenia Gravis, a patient group, suggests eating your largest meal earlier, when you have the most energy.

Ask about timing with pyridostigmine

If you take pyridostigmine (Mestinon), your doctor may want you to time meals with your doses. The MGFA gives the example of eating about an hour after a dose, when the medicine is working its best. Conquer Myasthenia Gravis suggests taking it shortly before mealtimes.

The right timing depends on your medicine, dose and schedule. Ask your neurologist or pharmacist what timing is right for you. Do not change your dose or schedule on your own.

Eat smaller meals more often

Several small meals tire your muscles less than a few large ones. Mayo Clinic and Conquer Myasthenia Gravis both suggest this.

Choosing Foods That Are Easier to Swallow

Softer, moist foods take less chewing. That saves your strength for swallowing.

Foods that are often easier

  • Tender chicken or fish instead of tough meats
  • Chopped or minced meat
  • Egg salad or canned salmon
  • Smoothies
  • Foods moistened with gravy, sauce, broth, butter or yogurt

Foods that are often harder

Conquer Myasthenia Gravis lists these as harder to manage:

  • Dry, crumbly foods like crackers, cookies, rice, nuts, chips and popcorn
  • Bread items like sandwiches, bagels and muffins
  • Tough meat like steak
  • Raw fruits and vegetables, which Mayo Clinic also lists as harder to chew

Watch out for mixed textures

Foods that are part solid and part liquid can be tricky. The liquid moves fast while the solid part needs chewing. Examples include cereal with milk, soup with chunks and fruit in juice. Ice cream and popsicles also melt into thin liquid in your mouth.

Liquids

Thin liquids like water move quickly and are easier to inhale by accident. A speech-language pathologist may suggest thickening your drinks. Use only the thickness your care team recommends.

Safe Eating Habits at Every Meal

These simple habits come from the MGFA, Mayo Clinic, Conquer Myasthenia Gravis and the Walton Centre.

  • Sit fully upright to eat, with your head level. Stay upright for about 30 minutes after.
  • Take small bites and sips. Conquer Myasthenia Gravis suggests about half a teaspoon at a time.
  • Chew slowly and rest between bites.
  • Swallow fully before the next bite.
  • Do not talk while chewing. Turn off the TV and keep distractions low.
  • Eat only when you are fully alert.
  • Spit it out if you cannot swallow a mouthful. As Conquer Myasthenia Gravis puts it, a little embarrassment is better than choking.
  • Stop and rest if your jaw or throat starts to tire.

Swallowing pills

If pills are hard to swallow, tell your pharmacist. Do not crush, split or open any pill or capsule without asking first. Some medicines are not safe to take that way. Your pharmacist may know of a liquid form or another option.

How a Speech-Language Pathologist Can Help

A speech-language pathologist (SLP) is a specialist in speech and swallowing. Your doctor can refer you. According to the MGFA, the SLP may:

  • Check how the muscles of your face, mouth and throat are working
  • Watch you eat and drink foods of different textures
  • Suggest thicker liquids, which can be safer than thin ones
  • Order a swallow study if needed

Swallow studies

The MGFA describes two common tests:

  • Modified barium swallow study: You eat and drink foods mixed with barium while an X-ray video shows how you swallow.
  • FEES (flexible endoscopic evaluation of swallowing): A thin, flexible camera is passed through your nose to watch your throat while you swallow.

If your SLP gives you swallowing exercises, the MGFA suggests doing them when your medicine is working best, not right before eating, so you do not tire your muscles before a meal.

Aspiration: When Food Goes Down the Wrong Way

Aspiration means food, drink or saliva goes into your airway instead of your stomach. This can lead to a lung infection called aspiration pneumonia.

According to MedlinePlus, signs of aspiration pneumonia include:

  • Fever
  • Cough with discolored or foul-smelling mucus
  • Chest pain
  • Trouble breathing or wheezing
  • Feeling very tired
  • Confusion

Call your doctor the same day if you have a fever or a new cough after choking or coughing during meals. Infection can also make MG weaker, so treating it early matters.

Also tell your doctor if you are losing weight without trying or are not drinking enough because swallowing is hard.

When to Call 911

Call 911 right away if someone is choking and cannot speak, cough strongly or breathe. MedlinePlus lists these danger signs of choking:

  • Grabbing at the throat
  • Not being able to speak
  • Noisy or high-pitched breathing
  • A weak cough that is not clearing the throat
  • Skin turning bluish

If the person can cough hard and speak, let them keep coughing. If they cannot, start first aid such as abdominal thrusts (the Heimlich maneuver) while someone calls 911. Family members may want to take a first aid and CPR class.

Also call 911 or go to the ER if you:

  • Cannot swallow at all, or cannot clear your saliva
  • Feel short of breath, or breathe fast and shallow
  • Have a weak cough that cannot clear mucus
  • Have swallowing trouble that is getting worse quickly along with breathing trouble

These can be signs of a myasthenic crisis, when the breathing muscles become too weak. Tell the emergency team you have MG.

Frequently Asked Questions

Can myasthenia gravis cause choking?

Yes. Weak throat muscles can let food or liquid go down the wrong way. Softer foods, small bites, sitting upright and eating when you are strongest can lower the risk.

What should I eat if swallowing is hard with MG?

Soft, moist foods are usually easier, such as fish, chopped meat, egg salad and smoothies. Dry, crumbly and tough foods are often harder. An SLP can give advice for your own needs.

When should I take Mestinon before eating?

It depends on your dose and schedule. Ask your neurologist or pharmacist to help you plan your meals around your doses.

Do swallowing problems mean my MG is getting worse?

They can be a sign that MG is more active, so tell your doctor. Swallowing trouble with any breathing difficulty is an emergency. Call 911.

The Bottom Line

Myasthenia gravis swallowing problems happen because the muscles you chew and swallow with tire out with use. Eating when you are strongest, timing meals with your medicine as your doctor advises, and choosing soft, moist foods can make meals safer. A speech-language pathologist can test your swallow and give you a personal plan. Call 911 for choking that will not clear, trouble breathing or not being able to swallow saliva.

Sources

About the author: Anna Curran, RN, BSN, PHN, is a registered nurse, public health nurse and nurse educator who has taught health topics in plain language since 2012. More about Anna.

This article is for general education only and is not medical advice. Talk with your own doctor or licensed provider before you start, stop or change any treatment. In an emergency, call 911. In crisis, call or text 988. See our medical disclaimer.