Living With POTS: Daily Tips From a Nurse for Easier Days

Living with POTS gets easier when you plan your day around the things that make symptoms worse: standing still, heat, big meals and getting up too fast. Small habits, like rising in stages, taking cooler showers and keeping water nearby, can add up to more good hours. These tips work best alongside the treatment plan you build with your doctor.

You know your body best. Try one or two changes at a time and notice what helps.

Living With POTS: A Gentler Morning Routine

Mornings are often the hardest part of the day with POTS. A school health fact sheet from Kennedy Krieger Institute notes that symptoms are often worse in the morning, when blood pressure tends to be lowest.

Try this step-by-step start:

  1. Drink first. Keep a full water bottle by your bed. NINDS notes that drinking about 16 ounces (2 glasses) of water before standing can help raise blood pressure.
  2. Wake up your muscles. While still lying down, squeeze and release your leg and buttock muscles, and point and flex your feet a few times.
  3. Sit before you stand. Sit on the edge of the bed for a few minutes.
  4. Stand slowly and pause before you start walking.
  5. Put on compression early. It may be easier to put on compression garments before you get up and move around for the day.
  6. Save hard tasks for later. If mornings are rough, plan errands and big tasks for the time of day you feel best.

Beating the Heat

Heat is one of the biggest POTS triggers. Vanderbilt Autonomic Dysfunction Center explains that heat widens blood vessels and causes fluid loss through sweat.

  • Use air conditioning or fans at home and in the car.
  • Try a cooling vest, cooling towel or handheld fan when you go out.
  • Plan outdoor activities for early morning or evening.
  • Drink extra fluids on hot days.
  • Dress in layers so you can cool down quickly.
  • Avoid hot tubs and saunas.

Safer Showers and Baths

Hot showers are a classic trigger, according to Cleveland Clinic. Hot water widens blood vessels, and standing still in a steamy bathroom adds to the problem.

  • Use lukewarm water instead of hot.
  • Use a shower chair so you can sit.
  • Keep showers short.
  • Try showering at night if mornings are hard.
  • Leave the door cracked or run the fan to cut steam.
  • Sit down to dry off and dress.
  • Install grab bars and use a non-slip mat to lower fall risk.

If you live with someone, let them know when you’re showering in case you need help.

Standing in Lines and Other Tough Spots

Standing still is hard with POTS because blood pools in your legs. Cleveland Clinic lists standing in lines and shopping as common triggers.

When you must stand:

  • Cross your legs and squeeze your thigh and buttock muscles.
  • Rise up on your toes and back down.
  • Keep your legs moving instead of standing frozen in place.
  • Wear your compression garments.

Other ideas:

  • Shop at less busy times, or use curbside pickup and delivery.
  • Bring a lightweight folding stool or a cane seat.
  • Ask to sit while you wait at the pharmacy or doctor’s office.
  • Sit down right away if you feel faint. Don’t try to push through it.

Eating Well With POTS

What and how you eat can affect symptoms. After a big meal, blood moves to your digestive system, which leaves less for the rest of your body.

  • Eat smaller meals more often. Vanderbilt and Cleveland Clinic both suggest several small meals instead of a few large ones.
  • Notice your triggers. Vanderbilt notes that some people find alcohol, caffeine or large amounts of carbohydrates make symptoms worse.
  • Choose salty snacks if your doctor recommends extra salt. Cleveland Clinic suggests broth, pickles, olives and nuts.
  • Keep water with you all day and sip often.
  • Rest after meals if you notice symptoms get worse after eating.

Only add extra salt if your doctor says it’s right for you. It isn’t safe for everyone.

Sleep Position and Better Rest

Many people with POTS sleep poorly. A racing heart, sweating and chest discomfort can wake you up.

  • Raise the head of your bed. Cleveland Clinic suggests raising it 6 to 10 inches, using risers or a wedge under the mattress.
  • Keep a regular schedule. Vanderbilt recommends going to bed and waking up at the same times each day.
  • Avoid caffeine, alcohol and exercise close to bedtime.
  • Keep your room cool and dark.
  • Limit naps when you can.

If POTS keeps you from sleeping well, talk with your provider. Poor sleep can make fatigue and brain fog worse.

School Accommodations

Students with POTS may qualify for help through a 504 plan or an IEP. The Kennedy Krieger Institute POTS fact sheet suggests options such as:

  • Flexible schedules, partial days or online classes
  • Elevator access and a pass to leave class early
  • Permission to move around the classroom
  • Rest breaks as needed
  • Temperature control in the classroom
  • An extra set of textbooks so the student doesn’t carry heavy bags
  • Copies of teacher notes and extra time on tests and homework
  • A school health plan that lists warning signs, medicines, fluid and salt goals and an emergency plan

Since fluids are so important, ask for permission to carry a water bottle and snacks in class. Parents, the school nurse and teachers work best as a team.

Work Accommodations

POTS can make a full workday hard. The Job Accommodation Network (JAN) lists ideas such as:

  • Frequent rest breaks
  • Flexible scheduling and leave for appointments
  • Working from home
  • A stool or sit-stand setup so you can change positions
  • A chair with armrests and locking wheels to steady yourself
  • Fans or a portable air conditioner
  • Anti-fatigue mats for standing jobs
  • Removing heavy physical tasks

JAN offers free, private advice for workers and employers at askjan.org.

Planning for Flare Days

Even with good habits, you will have harder days. Illness, heat, travel, menstrual periods, poor sleep and stress can all bring on a flare. Having a plan ready helps.

  • Lie down with your legs raised when symptoms are strong.
  • Increase fluids as your doctor has advised.
  • Cancel or postpone what can wait. Rest is part of treatment.
  • Keep gentle movement if you can, such as leg exercises in bed, so you don’t lose fitness.
  • Keep a flare kit ready: water bottle, salty snacks, electrolyte drinks if approved, compression garments, a fan and your medicine list.
  • Try calming activities like slow breathing, progressive muscle relaxation, calming music or journaling.
  • Track the flare in a notebook or app so you and your doctor can spot patterns.

Call your doctor if flares are getting more frequent or lasting longer than usual.

When to call 911

Call 911 if you faint and are hurt or don’t come to within a couple of minutes, or if you have chest pain, an irregular or pounding heartbeat with fainting, trouble speaking, vision changes, weakness in an arm or leg, or a seizure. These signs come from MedlinePlus guidance on fainting and need emergency care.

Frequently Asked Questions

Can I still exercise if I have POTS?

Yes, and it’s one of the most helpful things you can do. Start with reclined exercise, such as a recumbent bike, rowing or swimming, and build up slowly. Ask your doctor about physical therapy to get started safely.

Is it okay to take a bath instead of a shower?

A lukewarm bath may be easier than standing in a shower, but hot baths can trigger symptoms. Get out slowly, sit while drying off, and have someone nearby if you tend to faint.

Can I travel with POTS?

Many people do with planning. Stay hydrated, wear compression, move your legs often on long trips, and request an aisle seat or wheelchair help at airports if needed.

Is POTS a disability at work?

POTS can limit major life activities for some people. JAN can explain your options for workplace accommodations, and many changes are simple and low cost.

The Bottom Line

Living with POTS means working with your body instead of against it. Rise slowly, stay cool, eat smaller meals, keep fluids close and use counter-maneuvers when you have to stand. Ask for school or work accommodations if you need them, and keep a flare plan ready. These habits, along with the treatment plan from your doctor, can help you have more good days.

Sources

About the author: Anna Curran, RN, BSN, PHN, is a registered nurse, public health nurse and nurse educator who has taught health topics in plain language since 2012. More about Anna.

This article is for general education only and is not medical advice. Talk with your own doctor or licensed provider before you start, stop or change any treatment. In an emergency, call 911. In crisis, call or text 988. See our medical disclaimer.